Last update 16 November 2011
(Please notify blades49456@sbcglobal.net of non-working web pages listed below)
|
5. GETTING IN
CONTACT -
MESSAGE BOARDS, LIVE CHAT AND WEB PAGES |
| 16. CLINICAL TRIAL INFORMATION |
| 17. SPECIAL
EDUCATIONAL NEEDS |
| 18. CAREGIVERS' SUPPORT |
1. WEGENER'S GRANULOMATOSIS WEB PAGES
Vasculitis
Foundation, International Web
Page (The best place to
start)
http://www.vasculitisfoundation.org
or http://www.wgassociation.org
Italian WG Page
(Merck Manual)
http://www.msd-italia.it/altre/manuale/sez05/0500480.html
Kidney and
Vasculitis
http://www.chicagovasculitis.com/Vasculitis_Foundation,_Chicago_Area_Chapter/Dr._Schliebens_Slides.html
Mike Clay's
Web
Pages (Old WG iRC group,
wg-discussion has been discontinued. See Yahoo wgdiscussion or FB
groups)
http://www.weareb.org/WG
http://www.weareb.org/mailman/listinfo/wg-discussion (WG e-mail group)
http://www.weareb.org/WG/chat.jsp
(Info
on Internet Relay Chat)
New Zealand
WG Web Page
http://www.wegeners.org.nz/home
Nowegian
Wegener's Granulomatosis Page
http://home.c2i.net/flatens/index.html
Wegener's
Granulomatosis - Audio MP3 Recording
http://www.jon-strickland.com/downloads/Jon-Strickland-Vasculitis.mp3
Wegener's
Granulomatosis - Therapeutics 2006
http://www.medscape.com/viewarticle/529310_1
Wegener's
Granulomatosis - emedicine.com
http://www.emedicine.com/med/topic2401.htm
(Click here to return to Index)
2. RELATED VASCULITIS & WG WEB SITES
Vasculitis Foundation - The place to start
http://www.vasculitisfoundation.org/node/1921
Patient Handbook - Entire Contents
http://www.vasculitisfoundation.org/node/1927
Patient Handbook -Download by topic
http://www.vasculitisfoundation.org/og
Chapter Lisitings to join
http://www.vasculitisfoundation.org/vasculitismedicalconsultants
Consultants
http://www.vasculitisfoundation.org/vision/staff
VF Staff
http://www.vasculitisfoundation.org/patientstories
Patient Stories
15th
International Vaculitis and ANCA Workshop (May 15-18, 2011 - Chapel
Hill, North Carolina)
http://www.anca2011.org/
http://onlinelibrary.wiley.com/doi/10.1111/cei.2011.164.issue-s1/issuetoc
Akron
Children's Hospital Vasculitis Clinic
https://www.akronchildrens.org/cms/site/97e4e21057a40be6/index.html
ANCA-Associated Systemic Vasculitis (AASV) - Pathogenesis
(2010)
http://arthritis-research.com/content/12/1/202
ANCA
Vasculitis Slide Show - Genetech (Maker of Rituximab)
http://www.ancavasculitis.com/pdfs/Insights_into_AAV.pdf
Autoimmune
Blood Test Chart - Univ. of Washington - Immunology
http://www.orthop.washington.edu/PatientCare/OurServices/Arthritis/Articles/LabTests.aspx
http://depts.washington.edu/labweb/dept/div/imm/refchart.html
[Currently not
available]
http://www.orthop.washington.edu/PatientCare/OurServices/Arthritis/Articles/LabTests.aspx#LiveTabsContent77173
Autoimmune
Diseases - NIH - Description of Activities
http://www.niaid.nih.gov/about/whoWeAre/profile/fy2004/Documents/research_autoimmune.pdf
Autoimmunity
- American Association of Rare Diseases (AARDA) - Interactive Patient
Education
http://www.aarda.org/modules/ba/ba.swf
Autoimmunity & Nervous System (Involvement of vagus
nerve in inflammation cascade)
http://www.eurekalert.org/pub_releases/2007-10/nsij-sda102307.php
Bactrim Desensitization Protocol
http://depts.washington.edu/madclin/providers/protocols/bactrim.htm
Baylor University - School of Medicine Waco, TX
http://www.baylorclinic.com/services-specialties/immunology/our-services.cfm
EULAR Recommendations for
treating
small vessel vasculitis - 2009
http://www.vasculitis.org/images/documents/smallmediumvessel.pdf
European League Against
Rheumatism/European Vasculitis Study Group
Recommendations for the Management of
Vasculitis - Dec 2009 [must register with
Medscape to view]
http://www.medscape.com/viewarticle/713287
Finding an expert in Vasculitis
http://www.biomedexperts.com/Concept.bme/22540/Vasculitis
German Vasculitis
Support Group
http://vaskulitis.org
Giant Cell Arteritis
(Temporal Arteritis) Detection
by ultrasound
http://www.medpagetoday.com/Rheumatology/GeneralRheumatology/19168
Immune System Description
http://www.merck.com/mmhe/sec16/ch183/ch183a.html#sec16-ch183-ch183a-10
Immunology - Molecular
http://www.mi.interhealth.info/
Management
of Herpes
Zoster (Shingles)
http://www.aafp.org/afp/20000415/2437.html
Medscape - Emedicine - Rheumatology
http://emedicine.medscape.com/rheumatology
Nephrology
& Dialysis
http://kidney.niddk.nih.gov/kudiseases/pubs/hemodialysis/
The
Netherlands Vasculitis Page
http://www.vasculitis.nl
Peripheral
Neuropathy
http://www.medicinenet.com/Peripheral_Neuropathy/article.htm
Plasma
Exchange
http://www.mdausa.org/publications/fa-plasmaph.html
http://www.mdausa.org/publications/fa-plasmaph.html (Risks of apheresis)
http://www.regence.com/trgmedpol/medicine/med05.html
Polymyalgia Rhumatica & Giant Cell
Arteritis - PMR/GCAUK
http://www.pmrgcauk.com/
http://www.pmrgcauk.com/documents/Leaflet%20-%20TAB.pdf
Vasculitis -
Nat'l. Heart Lung & Blood Institute
http://www.nhlbi.nih.gov/health/dci/Diseases/vas/vas_whatis.html
Vasculitis -
Self-help booklet (British)
http://www.lupusuk.com/selfhelpinvasculitis.asp
Vasculitis -
Addenbrooke's Hospital, U.K.
http://www.addenbrookes.org.uk/serv/clin/renal/services/vasculitis_lupus.html
Vasculitis,
Amyloidosis, Immunodeficiency
http://www.pathguy.com/lectures/imm-iii.htm (With Drawings,
scroll down)
Vasculitis
Foundation
- 2008 Symposium - Rochester, MN
http://rarediseasesnetwork.epi.usf.edu/vcrc/news/2008symposium.htm
Vasculitis - Great
Ormand Street Hospital -
U.K.
http://www.ich.ucl.ac.uk/gosh_families/information_sheets/vasculitis/vasculitis_families.html
(Web
Page)
Vasculitis - Italian
http://www.vasculiti.it/
Vasculitis -
MedlinePlus tutorial on vasculitis
http://www.nlm.nih.gov/medlineplus/tutorials/vasculitis/htm/index.htm
(Click here to return to Index)
3. MEDICAL RESOURCES ON-LINE
Advocacy for Patients ACR Leaflet
on Vasculitis
http://www.cks.nhs.uk/patient_information_leaflet/vasculitis_arc
Advocacy for patients
http://advocacyforpatients.org/resources.html
(For viewing on line or printing)
http://www.arthritisresearchuk.org/Files/2047-Vasculitis.pdf (For
booklet size printing)
American
College of Rheumatology-Patient information on autoimmune diseases
http://www.rheumatology.org/practice/clinical/patients/diseases_and_conditions/vasculitis.asp
http://www.rheumatology.org/about/newsroom/2010/2010_the_body_against_itself.asp
Accessing
Health Care in Europe
http://www.eccireland.ie/downloads/AccessingHealthcareTreatmentInEurope.pdf (For
European residents)
ANCA
Vasculitis - Genentech
http://www.ancavasculitis.com/
http://www.ancadiseaseed.com/Insights_into_AAV.pdf
http://www.ancavasculitis.com/animation.php
Angel Flight
- air service at no cost for patients
http://www.angelflightmidatlantic.org/
(MidAtlantid U.S.)
http://www.angelflightne.org/
(Northeast U.S.)
http://www.angelflight.org/
(West U.S.)
Autoimmune
Glossary
http://pre-pg.blogspot.com/2007/07/glossary-of-immunology.html
Best Doctors
http://www.bestdoctors.com/
Best
Hospitals - U.S. News and World Report
http://health.usnews.com/best-hospitals
http://health.usnews.com/best-hospitals/pediatric-rankings
Biology Pages - Searchable (On-line biology book)
http://biology-pages.info/
Cleveland
Clinic - Center for Continuing Medical Education
http://www.clevelandclinicmeded.com/online/text-based.aspx
CME Text
http://www.clevelandclinicmeded.com/online/webcasts/
CME
webcasts
http://www.clevelandclinicmeded.com/online/podcasts/
CME
podcasts
European Vasculitis Study Group (EUVAS)
http://www.vasculitis.org
Guidelines to Clinical Practice
http://www.guidelines.gov/
How
to check out your physician
http://www.quackwatch.org/04ConsumerEducation/QA/mdcheck.html
How Your
Immune System Works
http://www.howstuffworks.com/immune-system.htm/printable
Immunology
and Immune Defense against Microbial Pathogens
http://www.bact.wisc.edu/courses.php
(Search for immunology)
Insurance Codes (Used to code procedures and conditions-ICD9)
http://icd9cm.chrisendres.com/index.php?action=alpha
Insurance - Pre-existing
Condition
https://www.pcip.gov/
International
Network for the Study of
Systemic Vasculitides
http://www2.ccf.org/inssys/INSSYSsites.htm
http://www2.ccf.org/inssys/addressllist.htm
(Click here to return to Index)
4. GETTING
CONNECTED
http://groups.yahoo.com
Search for Yahoo Groups
Google http://groups.google.com
(Search for
groups among thousands on Usenet)
FaceBook http://www.facebook.com
(Click on "Groups" and use group
search window)
(Click here to return to Index)
5. GETTING
CONNECTED - MES'G. BOARDS/LIVE CHAT/BLOGS
Andrew's WG Web Page
with Live
Chat
(Live chat requires JAVA enabled)
http://www.wegenersnet.org/index.jsp
WG Live Chat
on Monday's 9 PM Eastern
Time (Requires
IRC client program such as mIRC or
IRCLE
Channel #wegeners
on newnet.net
or use newnet.net)
(Click here to return to Index)
6. PERSONAL WG WEB PAGES
Andrew's WG Web Page
http://www.wegeners-granulomatosis.com
Arnie's WG
Web Page
http://arniemarge.tripod.com/arnieepistle.html
(Click here to return to Index)
Prescription Assistance - The Senior AllianceCyclophospamide (Cytoxan)
http://www.aaa1c.org/consumers/resource13.htm
American Society of Health System Pharmacists -The consumer site
http://www.safemedication.com
Drug Interactions - checking for (MacIntosh users may only see a limited list of medications)
http://www.drugdigest.org/wps/portal/ddigest
eHealthMe - Real World Outcomes
http://www.ehealthme.com/
ExpressScripts (a big pharmacy benefits manager) - The consumer site
http;//www.drugdigest.org
Federal Drug Administration (U.S.) Index to drug information
http://www.fda.gov/cder/consumerinfo
Herbs and supplements - Independent testing
http://www.consumerlab.com/
Institute for Safe Medication Practices
http://www.ismp.org
Medical Drug Interaction Checker
http://www.drugs.com/drug_interactions.html
Medical Necessity for Rituximab (Rituxan)
http://www.omsusa.org/pranzatelli-insurance-Rituximab.htm
Mesna
http://www.patient.co.uk/showdoc/30003790/
Methotrexate Family Physicians Guide to Monitoring
http://www.aafp.org/afp/20001001/1607.html
National Library of Medicine - Chose "Medications"
http://www.medlineplus.gov
Off-label
Medications - What you need to know
http://www.ahrq.gov/consumer/cc/cc042109.htm
Physicians Desktop Reference
http://www.drugs.com/pdr/
Prednisone and other glucocorticoids
http://en.wikipedia.org/wiki/Glucocorticoid
Prescription Assistance - The Senior Alliance
http://www.aaa1c.org/consumers/resource13.htm
Prescriptions Assistance - Medicare
http://www.socialsecurity.gov/pubs/10115.html
Prescriptions - Information on abbreviations
http://media.everypatientsadvocate.com/columns/2007/0807-rxabbreviations.htm#abbreviations
Prescription Drug Monographs - Keyword Search
http://www.rxlist.com (Drug Information)
Rituximab (MabThera/Rituxan)
Patient Information
http://en.wikipedia.org/wiki/Rituximab -
Safety and clinical outcomes of rituximab therapy in patients with different autoimmune diseases
http://arthritis-research.com/content/pdf/ar3337.pdf
On-line Medication Scheduling
http://www.mypillbox.org
Steroids - Withdrawal
http://www.medicinenet.com/steroid_withdrawal/article.htm
WebMD (Search Drug and Herb section)
http://my.webmd.com/medical_information/drug_and_herb/default.htm
Worst Pills Web Page
http://www.worstpills.org
(Click here to return to Index)
8. FINANCIAL ASSISTANCE FOR MEDICATIONS
Almost all of the drug companies have programs to make free medications available to patients under so-called "Patient Assistance Programs".
Each company is different on their specific requirements, most are based on financial need. Some manufacturers require only a letter from the patient's physician. Others require substantial back-up information on rather lengthy forms.
Some will mail the medication to your home, more commonly to your physician's office, or sometimes to your pharmacy with a drug card to be used when picking up prescriptions.
All medications supplied under a P.A. program require a prescription and most require your physician's signature.
Physician's offices do considerable paper work for patient assistance programs for patients. This is time consuming for the office staff. Preparing the paper work is a gift. The physician receives no compensation to reimburse the cost of assisting the patient.
Because it is a free service by the physician and his staff, the patient needs to take responsibility of notifying the office when the next renewal needs to be submitted. Usually it is needed every three months.
Some applications can be done on the internet. Many applications must be on forms from the drug company although some of these may be printable off the internet. If possible, the patient should obtain the forms from the manufacturer's web page or via mail to save the physician's office unnecessary work.
Scams exist that demand money up front to find prescription help. Legitimate sites don't ask for money up front.
Accessing
Patient Assistance
Programs
http://www.rxassist.org/
American
College of Rheumatology - Patient Assistance Programs
http://www.rheumatology.org/practice/clinical/patients/acrast.asp
Benefits and Work - United Kingdom
http://www.benefitsandwork.co.uk/
(May require membership)
Federal
Poverty Guidelines
https://www.cms.gov/MedicaidEligibility/downloads/POV10Combo.pdf
Healthcarecoach
http://www.healthcarecoach.com/resources/index.php?view=detail&id=85&node=23
Medication health insurance resources - Dr. Koop's web page
http://www.kspope.com/medications/index.php
Patient
Advocate Foundation
http://www.patientadvocate.org/
Patient
Assistance - Rituximab
For
physicians
http://www.genentechaccesssolutions.com/portal/site/AS/
- for patients
http://www.rituxan.com/wg-mpa/patient/financial-services/index.html
- for WG/MPA patients
Patient
Assistance for Psychologically Active Drugs
http://www.nami.org/helpline/freemed.htm
State High
Risk Pools
http://healthinsuranceinfo.net/managing-medical-bills/high-risk-pools-chart.htm
(Click
here to return to Index)
9. SOCIAL SECURITY DISABILITY
There
may be better recovery if you can prove your disability was "work
related". You
might want to consult with a lawyer to consider filing
for "third-party"
Allsup - a legal firm
specializing in disability claims on a contingency basis
http://www.allsup.com/
http://www.allsup.com/about-ssdi/free-ssdi-evaluation.aspx
Benefits
Checkup - U.S. National Council on Aging
http://www.benefitscheckup.org/
College
Students and Disability Law
http://www.ldonline.org/article/6082
Disability
Secrets - Tips, Secrets, & Advice
http://www.disabilitysecrets.com/
Private
Assistance Filing Disability
Claims
http://www.allsup.com
U.S.A.
Federal
Poverty Guidelines - 2011
U.S. 2002
guidelines to determine eligibility for certain programs
http://aspe.hhs.gov/poverty/11poverty.shtml
Social
Security On-line Forms - Scroll down
http://www.ssa.gov/online/forms.html
Social Security & Disability
Resource Center - by a former SSA employee
http://www.ssdrc.com/
(Click here to return to Index)
10. HOW TO TALK TO YOUR PHYSICIAN
Be assertive and take an active role to improve your health care.
Good communication makes for good medicine)
http://www.vasculitis-patient.com/Talking_About_Symptoms.html
Be Your Own Advocate
http://www.webmd.com/healthy-aging/guide/be-your-own-health-advocate
Columbia
Medical
School
(New York City)
http://www.cumc.columbia.edu/patient-care
Duke
University Rheumatology
Clinic
(Chapel Hill, North Carolina)
http://www.dukehealth.org/services/rheumatology_and_immunology/about/index
Emory
University Vasculitis Clinic
(Atlanta,
Georgia))
http://medicine.emory.edu/divisions/lowance_center
(Chose rheumatology under
“Divisions & Centers”)
http://medicine.emory.edu/divisions/lowance_center/research/vasculitis.cfm
Massachusetts
General
Hospital
(Harvard Univ.,
Boston, MA)
http://www.mgh.harvard.edu/rai/
Rheuma-Klinik Bad Bramstedt
http://www.rheuma-zentrum.de/index.php?id=kbb_start
Rheumatology
and Autoimmune
Clinic
(Toronto, Canads)
Mount Sinai
Hospital - Rebecca MacDonald Centre
http://www.mountsinai.on.ca/care/rmcad/contact-us
Rush Vasculitis Clinic
(Chicago, Illinois)
http://www.rush.edu/rumc/page-1298328977151.html
Vasculitis
Service and Vasculitis
Clinic
(Cambridge, U.K.)
http://www.addenbrookes.org.uk/serv/clin/renal/services/vasculitis_lupus.html
University
of
Birmingham (Birmingham, U.K.)
http://www.crf.bham.ac.uk/activity/vasculitus.shtml
University of
California - Los Angeles, California
http://rheumatology.ucla.edu/body.cfm?id=27
http://www.uclahealth.org/body.cfm?id=453&action=detail&limit_department=15&limit_division=1094&limit_program=0
(Click here to return to Index)
12. RELATED AUTOIMMUNE DISEASE WEB PAGES
Anatomy of
the Immune System
http://www.microbiologybytes.com/iandi/2b.html
Apheresis
(Blood-cleansing)
http://en.wikipedia.org/wiki/Plasmapheresis
Autoimmune
Diseases - Johns Hopkins
http://autoimmune.pathology.jhmi.edu/whatisautoimmunity.cfm
Avascular
Necrosis
http://www.mayoclinic.com/print/avascular-necrosis/DS00650/DSECTION=all&METHOD=print
Bactrim
(Septra) Desensitization
http://depts.washington.edu/madclin/providers/protocols/bactrim.htm
Breast
Abnormalities - Systemic Diseases
http://radiographics.rsnajnls.org/cgi/content/full/19/suppl_1/S11?maxtoshow=#SEC2
Central
Nervous System (CNS)
Vasculitis
http://vasculitis.med.jhu.edu/typesof/cns.html
C-Reactive
Protein Test
http://en.wikipedia.org/wiki/C-reactive_protein
http://www.mayoclinic.com/health/c-reactive-protein/MY01018
Dental
Infection and Disease
http://www.rheumatic.org/teeth.htm
http://www.aafp.org/afp/980201ap/taubert.html
EULAR -
European League against Rheumatism
http://www.eular.org/
Immunoglobulin
http://emedicine.medscape.com/article/210367-overview
Immune
System -
NIH/NCR tutorial (Excellent, with illustrations in color)
http://rex.nci.nih.gov/behindthenews/uis/uisframe.htm
Immunology -
General
http://en.wikipedia.org/wiki/Immunology
Leukocytoclastic Vasculitis
- (Hypersensitivity vasculitis)
http://www.emedicine.com/derm/topic185.htm
Living with
Vasculitis Booklet - University of Birmingham
(Requires
Adobe Acrobat)
http://www.gosh.nhs.uk/gosh_families/information_sheets/vasculitis/vasculitis_families_booklet.pdf
Mixed
Connective Tissue Disease
http://www.mayoclinic.com/health/mixed-connective-tissue-disease/DS00675
http://www.medicinenet.com/mixed_connective_tissue_disease/article.htm
Osteoporosis
http://www.nos.org.uk/
http://www.osteoporosis.ca/
(English
and French)
http://www.nlm.nih.gov/medlineplus/osteoporosis.html
Peripheral
neuropathy - Managing the pain, frustration
http://www.ninds.nih.gov/health_and_medical/disorders/peripheralneuropathy_doc.htm
http://www.mayoclinic.com/health/peripheral-neuropathy/DS00131
Vasculitides
Diagnosis
http://vasculitis.med.jhu.edu/whatis/diagnosis.html
Relapsing
Polychondiritis
http://www.medicinenet.com/relapsing_polychondritis/article.htm
Rhuema21st
- Physicians Info
on Latest News for Rheumatologists.
http://emedicine.medscape.com/article/331475-overview
Staphilococcus Aureus
http://en.wikipedia.org/wiki/Staphylococcus_aureus
Stem Cell
Transplant to Treat Autoimmune Diseases - A fairly detailed study
http://www.haematologica.org/cgi/content/full/95/2/185
http://ard.bmj.com/content/67/7/991.abstract
Understanding Autoimmune Diseases
http://www.niams.nih.gov/Health_Info/Autoimmune/default.asp
http://rex.nci.nih.gov/behindthenews/uis/uisframe.htm
Vasculitis
Center - Johns Hopkins Univ
http://vasculitis.med.jhu.edu
Vasculitis -
Difficulties with ACR Standards
http://www.annals.org/content/129/5/345.full.pdf
Vasculitis -
Mayo Clinic
http://www.mayoclinic.com/health/vasculitis/DS00513
Vasculitis -
Power Point Presentation (Adobe Acrobat .pdf file) (Not up-to-date, no "biologicals")
http://intmedweb.wfubmc.edu/download/vasculitis.pdf
Vasculitic
Diseases - Power Point Presentation (Adobe Acrobat.pdf
file) (Black and white)
http://www.columbia.edu/itc/hs/medical/pathophys/immunology/2006/IMM-20BW.pdf
Vasculitis -
European Union Vasculitis Study Group (EUVAS)
http://www.vasculitis.org/
Vasculitis
EUVAS
- Slide Show - Brief review of "Chapel Hill Nomenclature"
http://www.ndt-educational.org/savageslide2008txt.asp
(Click here to return to Index)
ANCA
Interpretation - Frequency
Of cANCA, pANCA,
Anti-MPO &
Anti-PR3 In Vasculitis
http://www.rdlinc.com/pdf/ANCA-Guide-to-Interpretation-2010.pdf
ANCA Tests:
Comparison
of different tests for detection of antineutrophil cytoplasmic
antibodies
http://www.medscape.com/viewarticle/568996
ANCA Tests - Methods and Interpretation
http://www.specialtylabs.com/books/display.asp?id=47
Apheresis including plasmapheresis
Corticotrophin-Releasing Hormone testing (Can be useful to
determine if steroid discontinuance is safe)
http://www.ncbi.nlm.nih.gov/pubmed/10612488?dopt=Abstract
ESR/SED
(Erythrocyte sedimentation rate)
http://en.wikipedia.org/wiki/Erythrocyte_sedimentation_rate
ELISA
(Enzyme-Linked Immunosorbent Assay)
http://en.wikipedia.org/wiki/ELISA_test
Lab Test
Common for Lupus
http://www.mtio.com/lupus/lfalt1.htm
Lab Tests
On-Line:
Wonderful World of Tests - Links to
various on-line lab test information
http://www.labtestsonline.org/index.html
Lab Test
- Visual Algorithm - Vasculitis
http://www.arupconsult.com/Algorithms/VasculitisAdults.pdf
http://www.arupconsult.com/Algorithms/VasculitisChildren.pdf
Radioagraphic Tests for WG -
Scroll down to Sections 4-9
Thoracic Imaging of Wegener's
Granulomatosis
http://www.emedicine.com/radio/topic743.htm
Systemic
Rheumatic Diseases - Laboratory Testing
- 1998
http://www.postgradmed.com/issues/1998/02_98/ward.htm
Urinalysis:
Slides of Microscopic Examination
http://www.lhsc.on.ca/lab/renal/
Urinalysis Tutorial
http://medlib.med.utah.edu/WebPath/TUTORIAL/URINE/URINE.html
(Click here to return to Index)
American
Autoimmune-Related Disease Association.
http://aarda.org
http://www.aarda.org/patient_information.php
(Requests for information)
http://www.aarda.org/women.php
(Autoimmunity & Women)
http://www.aarda.org/articles.php
(InFocus Articles)
American Behcet's Disease Association
http://www.behcets.com
American
Hospice Foundation
http://americanhospice.org
(Articles and
Links)
American
Lung Association
http://www.lungusa.org/
Central
Nervous System Vasculitis
http://cnsvfinc.org
Churg-Strauss Syndrome Association
http://cssassociation.org
National Eye
Institue
http://www.nei.nih.gov
National
Institute for Arthritis and Musculockeletal and Skin Diseases
http://www.nih.gov/niams
National
Organization for Rare Diseases
http://www.rarediseases.org/search/rdblist.html
(Orphan
Disease List)
http://www.rarediseases.org/search/rdbsearch.htm (Rare Disease Database)
National
Institute of Allergy and Infectious Diseases
http://www.niaid.nih.gov
(Home
Page)
http://www.niaid.nih.gov/cgi-shl/contacts/contacts.cfm
(Key
contacts)
http://www.niaid.nih.gov/factsheets/wegeners.htm
(WG
Factsheet)
http://www.niaid.nih.gov/research/labs/lir6.htm
(WG
Study Protocols)
http://www.niaid.nih.gov/dait/pdf/ADCC_Final.pdf
(Report
to Congress in
Autoimmune Disease Research)
National Institute of Dental and Craniofacial Research
http://www.nidcr.nih.gov/
National
Institutes of Health
Orphan Drug
Product Development
http://www.fda.gov/orphan
Rare
Diseases Clinic Research Network
http://www.rarediseasesnetwork.org/
U.S.
National Libraries of Medicine - Public Archive of (some) Life Science Journals
http://www.pubmedcentral.nih.gov/
http://www.ncbi.nlm.nih.gov/pmc/
U.S.
National Network of Libraries of Medicine - Medline database
(Although
both search Medline, they can
give different
results)
(The NCBI web site has access to many
more databases than does Gateway)
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi
(Search engine for the NCBI to
search PubMed database)
http://gateway.nlm.nih.gov
(Search engine for
Nat'l. Library of Medicine for health matters)
The Virtual
Hospital -
1996 Presentation
and Discussion of Wegener's Granulomatosis
http://www.vh.org/Providers/TeachingFiles/PulmonaryCoreCurric/Wegeners/Wegeners.html
(Click here to return to Index)
15. GENERAL AND MEDICAL SEARCH ENGINES
Google
Search Engine
http://www.google.com (Use Google to
find other search engines)
http://news.google.com
(Search for recent
news)
Search
Health On The Net
http://www.hon.ch/
Search
Intellihealth - Harvard Medical School's Consumer Health
http://www.intelihealth.com
Search
Medscape
(Registration
Required)
http://www.medscape.com/px/mscpsearch?searchfor=searchform
Search Medical
for Medical Databases
http://www.diseasesdatabase.com/ddb14057.htm
Search
Medical News
http://www.medicalnewstoday.com/
Search Medical
Resoures
(Links to many journals,
associations, & databases)
http://www.medbioworld.com/
Search Merck
Manual - Home Edition
http://webseek.merck.com/query.html
Search National
Center for Biotechnology Information (Many medical resources)
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi
Search New
England Journal of Medicine (Jan. '75 to Date)
http://content.nejm.org/search.dtl
Search
for Physicians by Specialty
(Chose "Search for a physician,
http://www.ama-assn.org/aps/amahg.htm
then "Accept", then "Medical Specialty",
then enter requested info, then scroll
down to "search from an expanded
list of medical practice specialties)
(Click
here to return to Index)
Commercial site that lists clinical trials:
www.centerwatch.com
European Clinical Trials for Vasculitis
http://www.med.cam.ac.uk/nephrology/research/vasculitis.html
Government site offering guide to clinical trials:
www.nci.nih.gov/clinicaltrials/understanding
Tradegroup listing of clinical trials:
www.acrpnet.org/resources/trial/questions.html
U. S. Government site that lists clinical trials:
www.clinicaltrials.gov
http://clinicaltrials.gov/ct/screen/AdvancedSearch (Search by location, disease, treatment)
Parent & Educator Guide to Free Appropriate Public Education - State of Washington
http://www.psesd.org/specialservices/documents/504manual.pdf