AUTOIMMUNE VASCULITIS & WEGENER'S GRANULOMATOSIS

WEB PAGE ADDRESSES

Last update 16 November 2011

The following are some web addresses with Wegener's Granulomatosis and related or general medical information.  There is NO guarantee that the following sites are still in service, NOR that the information provided from the referenced sites is accurate, nor is a listing here to be considered endorsement by the compiler of this web page who is an autoimmune vasculitis (WG) patient but has no medical training.

            (Please notify blades49456@sbcglobal.net of non-working web pages listed below)

 

INDEX

1.  WEGENER'S GRANULOMATOSIS WEB PAGES

2.  RELATED VASCULITIS & WG WEB PAGES

3.  MEDICAL RESOURCES ON THE INTERNET

4. GETTING CONNECTED - E-MAIL GROUPS

5.  GETTING IN CONTACT - MESSAGE BOARDS, LIVE CHAT AND WEB PAGES

6.  PERSONAL WG WEB PAGES

7.  PHARMACEUTICALS (MEDICATIONS)

8.  FINANCIAL ASSISTANCE FOR MEDICATIONS

9.  SOCIAL SECURITY DISABILITY

10. HOW TO TALK TO YOUR PHYSICIAN

11. MAJOR MEDICAL CENTERS

12. RELATED AUTOIMMUNE DISEASE WEB PAGES

13. MEDICAL LABORATORY TESTS

14. NATIONAL ORGANIZATIONS

15. GENERAL AND MEDICAL SEARCH ENGINES

16. CLINICAL TRIAL INFORMATION
17. SPECIAL EDUCATIONAL NEEDS
18. CAREGIVERS' SUPPORT

 

1. WEGENER'S GRANULOMATOSIS WEB PAGES

    Vasculitis Foundation, International Web Page (The best place to start)
      http://www.vasculitisfoundation.org or http://www.wgassociation.org

    Australian WG Support Group Web Pages   (no longer exists)
 
    Canadian WG Web Page                                       (Information on Canadian Genetic Study)
      http://www.vasculitis.ca                                               

    Cleveland Clinic - Wegener's granulomatosis
      http://my.clevelandclinic.org/rheumatology_immunology/vasculitis_center/default.aspx
  
    Differential Diagnoses - Epocrates On-Line
      https://online.epocrates.com/u/2935327/Granulomatosis+with+polyangiitis+(Wegener)/Diagnosis/Differential

    Encyclopedia Britannica article
      http://www.britannica.com/eb/article-9076424/Wegener-granulomatosis

    German Patient's WG page
      http://www.vaskulitis.org

    Italian WG Page (Merck Manual)
      http://www.msd-italia.it/altre/manuale/sez05/0500480.html

    Kidney and Vasculitis
      http://www.chicagovasculitis.com/Vasculitis_Foundation,_Chicago_Area_Chapter/Dr._Schliebens_Slides.html

    Mike Clay's Web Pages   (Old WG iRC group, wg-discussion has been discontinued.  See Yahoo wgdiscussion or FB groups)
      http://www.weareb.org/WG
      http://www.weareb.org/mailman/listinfo/wg-discussion   (WG e-mail group)
      http://www.weareb.org/WG/chat.jsp                                       (Info on Internet Relay Chat)

    New Zealand WG Web Page                                                     
      http://www.wegeners.org.nz/home

    Nowegian Wegener's Granulomatosis Page
      http://home.c2i.net/flatens/index.html

    United Kingdom Patient Web Page - (Vasculitis)                 
       http://www.patient.co.uk/showdoc/27000776/

    United Kingdom - Stuart Strange Vasculitis Trust
      http://www.vasculitis-uk.org.uk/
      http://www.vasculitis-uk.org.uk/NewsletterJan2011.pdf       
(Local Support Groups)

    Swedish Wegener's Granulomatosis Page (in English)
      https://healthlibrary.epnet.com/GetContent.aspx?token=af362d97-4f80-4453-a175-02cc6220a387&chunkiid=100260

    What you should know about Wegener's Granulomatosis  (St. James Hospital-Dublin)
   
  http://www.stjames.ie/Departments/DepartmentsA-Z/I/Immunology/DepartmentinDepth/Wegeners.pdf

    Wegener's Granulomatosis - Audio MP3 Recording
      http://www.jon-strickland.com/downloads/Jon-Strickland-Vasculitis.mp3

    Wegener's Granulomatosis - Therapeutics 2006
       http://www.medscape.com/viewarticle/529310_1

    Wegener's Granulomatosis - emedicine.com
      http://www.emedicine.com/med/topic2401.htm

    Wegener's Granulomatosis - Wegenet                   (On-line chat and forum)
      http://www.wegenersnet.org/
      http://www.wegeners-granulomatosis.com/forum/ 

(Click here to return to Index)


 

2. RELATED VASCULITIS & WG WEB SITES

     Vasculitis Foundation - The place to start
      http://www.vasculitisfoundation.org/node/1921  Patient Handbook - Entire Contents
      http://www.vasculitisfoundation.org/node/1927 
Patient Handbook -Download by topic
      http://www.vasculitisfoundation.org/og  Chapter Lisitings to join
      http://www.vasculitisfoundation.org/vasculitismedicalconsultants  Consultants
      http://www.vasculitisfoundation.org/vision/staff  VF Staff
      http://www.vasculitisfoundation.org/patientstories  Patient Stories

    15th International Vaculitis and ANCA Workshop (May 15-18, 2011 - Chapel Hill, North Carolina)
      http://www.anca2011.org/
      http://onlinelibrary.wiley.com/doi/10.1111/cei.2011.164.issue-s1/issuetoc

    Akron Children's Hospital Vasculitis Clinic
      https://www.akronchildrens.org/cms/site/97e4e21057a40be6/index.html

    ANCA-Associated Systemic Vasculitis (AASV) -  Pathogenesis (2010)
      http://arthritis-research.com/content/12/1/202

    ANCA Vasculitis Slide Show - Genetech (Maker of Rituximab)
      http://www.ancavasculitis.com/pdfs/Insights_into_AAV.pdf

    Autoimmune Blood Test Chart - Univ. of Washington - Immunology  
      http://www.orthop.washington.edu/PatientCare/OurServices/Arthritis/Articles/LabTests.aspx
      http://depts.washington.edu/labweb/dept/div/imm/refchart.html  
[Currently not available]
      http://www.orthop.washington.edu/PatientCare/OurServices/Arthritis/Articles/LabTests.aspx#LiveTabsContent77173

    Autoimmune Diseases - NIH - Description of Activities
      http://www.niaid.nih.gov/about/whoWeAre/profile/fy2004/Documents/research_autoimmune.pdf

    Autoimmunity - American Association of Rare Diseases (AARDA) - Interactive Patient Education
      http://www.aarda.org/modules/ba/ba.swf

    Autoimmunity & Nervous System   (Involvement of vagus nerve in inflammation cascade)
      http://www.eurekalert.org/pub_releases/2007-10/nsij-sda102307.php

    Bactrim Desensitization Protocol
      http://depts.washington.edu/madclin/providers/protocols/bactrim.htm

     Baylor University - School of Medicine  Waco, TX
      http://www.baylorclinic.com/services-specialties/immunology/our-services.cfm

    Bronchiectasis - stretching of the bronchi causing mucus plugs and infection
      http://www.nlm.nih.gov/medlineplus/ency/article/000144.htm
      http://emedicine.medscape.com/article/296961-overview

    Canadian Vasculitis
      http://www.canvasc.ca/index.html
  
    Caregivers - Autoimmune Blogspot

      http://vfcaregivers.blogspot.com

    Cardio-vascular disease prevention
      http://www.ncbi.nlm.nih.gov/sites/entrez/18648594
   

    Common treatment of Rheumatic Diseases? (Aug. 2007)
      http://www.futuremedicine.com/doi/full/10.2217/17460816.2.4.333

    Diagnosing Vasculitis - Johns Hopkins
      http://www.hopkinsvasculitis.org/vasculitis/diagnosing-vasculitis/

    EULAR Recommendations for treating small vessel vasculitis - 2009
       http://www.vasculitis.org/images/documents/smallmediumvessel.pdf

    European League Against Rheumatism/European Vasculitis Study Group
      Recommendations for the Management of Vasculitis - Dec 2009     [must register with Medscape to view]
      http://www.medscape.com/viewarticle/713287

    Finding an expert in Vasculitis
      http://www.biomedexperts.com/Concept.bme/22540/Vasculitis

   German Vasculitis Support Group
      http://vaskulitis.org

    Giant Cell Arteritis (Temporal Arteritis) Detection by ultrasound
      http://www.medpagetoday.com/Rheumatology/GeneralRheumatology/19168

    Glossary of Vasculitis Terms
      http://vasculitis.med.jhu.edu/whatis/glossary.html

    Health Care Resources - many resources listed
      http://www.healthcarecoach.com/resources/index.php?view=detail&id=383&node=0

    Immune Monoclonal Antibodies
      http://focosi.altervista.org/immunotherapy.html#immunosuppressive%20mAbs
  

    Immune System Description
      http://www.merck.com/mmhe/sec16/ch183/ch183a.html#sec16-ch183-ch183a-10

    Immunology - Molecular   
      http://www.mi.interhealth.info/

    Management of Herpes Zoster (Shingles)

      http://www.aafp.org/afp/20000415/2437.html

    Medscape - Emedicine - Rheumatology
       http://emedicine.medscape.com/rheumatology

    National Heart, Lung, and Blood Institute - Diseases and Conditions - Vasculitis
      http://www.nhlbi.nih.gov/health/dci/Diseases/vas/vas_whatis.html
      http://www.nhlbi.nih.gov/health/dci/Diseases/vas/vas_livingwith.html
  
    Nasal Irrigation and Sinusitis Institute

      http://home.comcast.net/~reidgold/sinusitis
      http://www.ent-consult.com/sinus_disease_pro.html

      http://www.ent-consult.com/salineadditives.html
      http://en.wikipedia.org/wiki/Nasal_irrigation

    Nephrology & Dialysis
      http://kidney.niddk.nih.gov/kudiseases/pubs/hemodialysis/

    The Netherlands Vasculitis Page
      http://www.vasculitis.nl

    Patient UK - Vasculitis
      http://www.patient.co.uk/doctor/Vasculitis.htm

    Peripheral Neuropathy
     http://www.medicinenet.com/Peripheral_Neuropathy/article.htm

    Plasma Exchange
      http://www.mdausa.org/publications/fa-plasmaph.html
      http://www.mdausa.org/publications/fa-plasmaph.html             (Risks of apheresis)
      http://www.regence.com/trgmedpol/medicine/med05.html

    Polymyalgia Rhumatica & Giant Cell Arteritis - PMR/GCAUK
      http://www.pmrgcauk.com/
      http://www.pmrgcauk.com/documents/Leaflet%20-%20TAB.pdf

    Polyarteritis Nodosa Research and Support Group
      http://www.pansupportnetwork.org/

    Pregnancy and Vasculitis                                                           (2007 article)
      http://www.medscape.com/viewarticle/565456?src=mp

    Preventing Pneumocystis Pneumonia
      http://www.uptodate.com/contents/treatment-and-prevention-of-pneumocystis-carinii-p-jirovecii-pneumonia-in-non-hiv-infected-patients
  

    Pulmonary damage by medications                                       (2009 blog)
      http://odlarmed.com/?p=1736http://odlarmed.com/?p=1736

    Remission - 
Maintaining in Systemic Vasculitis - Medscape
      http://www.medscape.com/viewarticle/580569

   
    Stem Cell Transplant for Autoimmune Diseases - Status Report - 2009
      http://www.haematologica.org/cgi/content/full/95/2/185?ct=ct

    Sub-glottal Stenosis - U.K. London Specialist
      http://www.airwaystenosis.com/

    Sub-glottal Stenosis - Adult
      http://emedicine.medscape.com/article/865437-diagnosis

    Stuart Strange Truse - Support for vasculitis patients
      http://www.vasculitis-uk.org.uk/

    Takayasu's Arteritis Research Association
      http://www.takayasus.org/abouttara.htm


    Vasculitis - Controversies in Small Vessel Vasculitis (Good discussion on diagnosis and treatment)
     http://www.medscape.com/viewarticle/551532

    Vasculitis - Nat'l. Heart Lung & Blood Institute
      http://www.nhlbi.nih.gov/health/dci/Diseases/vas/vas_whatis.html

    Vasculitis - Self-help booklet (British)
      http://www.lupusuk.com/selfhelpinvasculitis.asp

    Vasculitis - published by the Working Committee of the Vasculitis-Patient-Self-Help-Group (VPS)
      http://www.vaskulitis.org/
   in English or German.  Scroll to the bottom to "The Vasculitides (by Dirk Biddle)"

    Vasculitis - Excellent U.K. Overview for Patients
      http://www.patient.co.uk/showdoc/40001183/

    Vasculitis - Addenbrooke's Hospital, U.K.
      http://www.addenbrookes.org.uk/serv/clin/renal/services/vasculitis_lupus.html  

    Vasculitis, Amyloidosis, Immunodeficiency
      http://www.pathguy.com/lectures/imm-iii.htm                       (With Drawings, scroll down)

   Vasculitis Clinics
      http://www.vasculitisfoundation.org/vasculitismedicalinstitutions
      http://www.mountsinai.on.ca/care/rmcad/contact-us 
(Vasculitis Clinic Vasculitis Clinic    416-586-4800 ext. 8549)

    Vasculitis FAQ - Vasculitis Clinical Research Consortium
      http://rarediseasesnetwork.epi.usf.edu/vcrc/learnmore/faqs.htm
 
    Vasculitis - French

      http://www.vascularites.org/  

    Vasculitis Foundation - 2008 Symposium - Rochester, MN
      http://rarediseasesnetwork.epi.usf.edu/vcrc/news/2008symposium.htm

    Vasculitis - Great Ormand Street Hospital - U.K.     
      http://www.ich.ucl.ac.uk/gosh_families/information_sheets/vasculitis/vasculitis_families.html  (Web Page)

    Vasculitis - Italian
      http://www.vasculiti.it/ 

    Vasculitis - MedlinePlus tutorial on vasculitis
   
   http://www.nlm.nih.gov/medlineplus/tutorials/vasculitis/htm/index.htm

    Vasculitis - Scottish Edren Unit
      http://www.edren.org/

    Vasculitis - U.K. NHS Booklet, "Living With Vasculitis"
     http://www.gosh.nhs.uk/gosh_families/information_sheets/vasculitis/vasculitis_families_booklet.pdf
   
    Vasculitis - Univ. of N. Carolina Kidney Center           (Excellent on-line booklet on ANCA vasculitis)
      http://www.unckidneycenter.org/patients/anca_vasculitis.htm
   
    Vasculitis Foundation - The place to start
       http://www.vasculitisfoundation.org/node/1921  Patient Handbook - Entire Contents
      http://www.vasculitisfoundation.org/node/1927 
Patient Handbook -Download by topic
      http://www.vasculitisfoundation.org/node/3010  Area Contacts & Chapters
      http://www.vasculitisfoundation.org/og  Chapter Lisitings to join
      http://www.vasculitisfoundation.org/vasculitismedicalconsultants  Consultants
      http://www.vasculitisfoundation.org/patientstories  Patient Stories

    Vasculitis Tutorial by patedu.com 

    Vasculitis Video - Simplified expanation
     
    Vasculitis - Voice4Vasculitis                                           (Information on vasculitis intend for U.K. patients)
      http://voice4vasculitis.googlepages.com/

    Vascuitis - Wikipedia
      http://en.wikipedia.org/wiki/Vasculitis

    Wrong Diagnosis Web Page
      http://www.wrongdiagnosis.com/v/vasculitis/intro.htm

    (Click here to return to Index)


 

3. MEDICAL RESOURCES ON-LINE

    Advocacy for Patients
      http://advocacyforpatients.org/

    American College of Rheumatology
       http://www.rheumatology.org/directory/geo.asp

      http://www.clinexprheumatol.org/acronyms.asp             (Acronyms) 

    ACR Leaflet on Vasculitis
      http://www.cks.nhs.uk/patient_information_leaflet/vasculitis_arc

    Advocacy for patients
      http://advocacyforpatients.org/resources.html   (For viewing on line or printing)

    
http://www.arthritisresearchuk.org/Files/2047-Vasculitis.pdf   (For booklet size printing)

    American College of Rheumatology-Patient information on autoimmune diseases
      http://www.rheumatology.org/practice/clinical/patients/diseases_and_conditions/vasculitis.asp
      http://www.rheumatology.org/about/newsroom/2010/2010_the_body_against_itself.asp

    Accessing Health Care in Europe
      http://www.eccireland.ie/downloads/AccessingHealthcareTreatmentInEurope.pdf  (For European residents)

    ANCA Vasculitis - Genentech
      http://www.ancavasculitis.com/
      http://www.ancadiseaseed.com/Insights_into_AAV.pdf
      http://www.ancavasculitis.com/animation.php

    Angel Flight - air service at no cost for patients     
     
http://www.angelflightmidatlantic.org/                                 (MidAtlantid U.S.)
      http://www.angelflightne.org/                                                 (Northeast U.S.)
      http://www.angelflight.org/                                                      (West U.S.)

    Autoimmune Glossary
      http://pre-pg.blogspot.com/2007/07/glossary-of-immunology.html

    Best Doctors
      http://www.bestdoctors.com/

    Best Hospitals - U.S. News and World Report
      http://health.usnews.com/best-hospitals
      http://health.usnews.com/best-hospitals/pediatric-rankings

    Biology Pages - Searchable   (On-line biology book)
      http://biology-pages.info/
  

    Cleveland Clinic - Center for Continuing Medical Education
      http://www.clevelandclinicmeded.com/online/text-based.aspx    
CME Text
      http://www.clevelandclinicmeded.com/online/webcasts/                CME webcasts
      http://www.clevelandclinicmeded.com/online/podcasts/               
CME podcasts  

    European Vasculitis Study Group (EUVAS)
      http://www.vasculitis.org

    Family and Friends - Advice on Coping
      http://www.vasculitis.ca/familyfriendadvice/informative/advice-for-family-and-friends-of-a-vasculitis-disease-sufferer.html

    Disease Database
      http://www.diseasesdatabase.com/content.asp
    
    Gastrointestinal Manifestations of Rheumatologic Disorders
      http://www.sums.ac.ir/~semj/vol3/jan2002/rheumato&GI.htm

    Guidelines to Clinical Practice
      http://www.guidelines.gov/

    How to check out your physician
      http://www.quackwatch.org/04ConsumerEducation/QA/mdcheck.html

    How Your Immune System Works
      http://www.howstuffworks.com/immune-system.htm/printable

    Immunology and Immune Defense against Microbial Pathogens
      http://www.bact.wisc.edu/courses.php   (Search for immunology)

    Insurance Codes (Used to code procedures and conditions-ICD9) 
      http://icd9cm.chrisendres.com/index.php?action=alpha

    Insurance - Pre-existing Condition
      https://www.pcip.gov/

    International Network for the Study of Systemic Vasculitides
     
http://www2.ccf.org/inssys/INSSYSsites.htm
      http://www2.ccf.org/inssys/addressllist.htm

    Making the Best of a Hospital Experience
      http://www.pinestreetfoundation.org/avenues/avenues16/hospital16.html


    Medical Billing Advocates
      http://www.billadvocates.com/

    Medical Dictionaries

      http://www.medterms.com/script/main/hp.asp             
      http://medical-dictionary.com/
      http://www.nlm.nih.gov/medlineplus/mplusdictionary.html

    Medicare Answers
      http://questions.medicare.gov/app/ask


    National Patient Travel Organization (U.S.)

     
http://www.patienttravel.org/index.html 

    Pediatric Rheumatology Clinic
      Nat'l. Institute of
Arthritis and Musculoskeletal and Skin Diseases
      http://www.niams.nih.gov/Health_Info/Pediatric_Diseases/default.asp

    Patient Advocate Foundation
      http://www.patientadvocate.org/

    Patient Advocacy Information
      http://en.wikipedia.org/wiki/Patient_advocacy

    Patient Hospitality Housing
      http://www.rarediseasetravel.org/

    Vasculitis Clinical Research Consortium

    http://www.rarediseasesnetwork.org/vcrc/index.htm

    Vascululitis - Mayo Clinic, Rochester MN
      http://www.mayoclinic.com/health/vasculitis/DS00513

    Vasculitis - The doctors doctor
      http://www.thedoctorsdoctor.com/diseases/vasculitis

(Click here to return to Index)


 

4. GETTING CONNECTED

                                                    http://groups.yahoo.com            Search for Yahoo Groups

        autoimmune                    (Much chit/chat)
        autoimmunity
        autoimmunediseases   (All autoimmune diseases, moderated)
        Behcet-support
        buergers_disease
       
chronic_pain
        chronic_pain_assistance

        erythema_nodosum_Group
        giantcellarteritis            
(formerly Temporal Arteritis)
        immune-system@yahoogroups.co.uk\
       
parents4wegeners        (Parents of children with WG, moderated)
        polyarteritisnodosa       (PAN, moderated)
        savvy@yahoogroups.com    (Vasculitis, all kinds, moderated)
        VasculitisoftheCNS      (Central Nervous System vasculitis)

        VOICE4VASCULITIS   
(Many U.K. members)
        weggies4weightloss     (For those wanting to lose weight on prednisone)
        wegeners-teens-only    (For teens with WG, moderated)


                                                   Google http://groups.google.com    (Search for groups among thousands on Usenet)
                                                   FaceBook  http://www.facebook.com    (Click on "Groups" and use group search window)

(Click here to return to Index)


 

5. GETTING CONNECTED - MES'G. BOARDS/LIVE CHAT/BLOGS

    Andrew's WG Web Page with Live Chat                                  (Live chat requires JAVA enabled)
      http://www.wegenersnet.org/index.jsp
   

    CaringBridge - a way to communicate with others with similar afflictions.
      http://www.caringbridge.org


    Wellsphere - Vasculitis
      http://www.wellsphere.com/wellpage/vasculitis

  
    Rheumatic Diseases Message Board                                    
Little used)
      http://members4.boardhost.com/sblrd/
                                

    WG Live Chat on Monday's 9 PM Eastern Time       (Requires IRC client program such as mIRC or IRCLE 
      Channel #wegeners on newnet.net                                         or use newnet.net)

    Wegener's  Granulomatosis  Chat Forum
      http://www.wegeners-granulomatosis.com/forum/showgroups.php

    Vasculitis Foundation
     http://www.vasculitisfoundation.org/blog
     http://www.vasculitisfoundation.org/patientstories

(Click here to return to Index)


 

6.  PERSONAL WG WEB PAGES

    Andrew's WG Web Page
      http://www.wegeners-granulomatosis.com

    Arnie's WG  Web Page
      http://arniemarge.tripod.com/arnieepistle.html
  

    Bruce's WG Web Page
      http://www.vasculitis-patient.com   

    Mike Clay's Web Page
     http://www.weareb.org/WG/                                
( Information on WG e-mail and chat) 

(Click here to return to Index)


7. PHARMACEUTICALS


    Prescription Assistance - The Senior  Alliance   
http://www.aaa1c.org/consumers/resource13.htm

American Society of Health System Pharmacists -The consumer site
http://www.safemedication.com
    Cyclophospamide (Cytoxan)
      http://www.rxlist.com/cytoxan-drug.htm

    Drug Interactions - checking for (MacIntosh users may only see a limited list of medications)
http://www.drugdigest.org/wps/portal/ddigest

eHealthMe - Real World Outcomes
http://www.ehealthme.com/

ExpressScripts (a big pharmacy benefits manager) - The consumer site
http;//www.drugdigest.org

Federal Drug Administration (U.S.) Index to drug information
http://www.fda.gov/cder/consumerinfo

Herbs and supplements
- Independent testing
      http://www.consumerlab.com/


Institute for Safe Medication Practices
http://www.ismp.org

Medical Drug Interaction Checker
http://www.drugs.com/drug_interactions.html

Medical Necessity for Rituximab (Rituxan)
http://www.omsusa.org/pranzatelli-insurance-Rituximab.htm

Mesna
http://www.patient.co.uk/showdoc/30003790/

Methotrexate Family Physicians Guide to Monitoring
http://www.aafp.org/afp/20001001/1607.html
    National Library of Medicine - Chose "Medications"
http://www.medlineplus.gov

    Off-label Medications - What you need to know
      http://www.ahrq.gov/consumer/cc/cc042109.htm

    Physicians Desktop Reference 
http://www.drugs.com/pdr/

Prednisone and other glucocorticoids
http://en.wikipedia.org/wiki/Glucocorticoid


Prescription Assistance - The Senior Alliance
http://www.aaa1c.org/consumers/resource13.htm

Prescriptions Assistance - Medicare
http://www.socialsecurity.gov/pubs/10115.html

Prescriptions - Information on abbreviations
http://media.everypatientsadvocate.com/columns/2007/0807-rxabbreviations.htm#abbreviations

Prescription Drug Monographs - Keyword Search
     http://www.rxlist.com             (Drug Information)
     
Rituximab (MabThera/Rituxan)
Patient Information
http://en.wikipedia.org/wiki/Rituximab -
Safety and clinical outcomes of rituximab therapy in patients with different autoimmune diseases
http://arthritis-research.com/content/pdf/ar3337.pdf

On-line Medication Scheduling
http://www.mypillbox.org

Steroids - Withdrawal
http://www.medicinenet.com/steroid_withdrawal/article.htm

WebMD (Search Drug and Herb section)
http://my.webmd.com/medical_information/drug_and_herb/default.htm

Worst Pills Web Page
http://www.worstpills.org

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8. FINANCIAL ASSISTANCE FOR MEDICATIONS

Almost all of the drug companies have programs to make free medications available to patients under so-called "Patient Assistance Programs".   

Each company is different on their specific requirements, most are based on financial need. Some manufacturers require only a letter from the patient's physician. Others require substantial back-up information on rather lengthy forms.

Some will mail the medication to your home,
more commonly to your physician's office, or sometimes to your pharmacy with a drug card to be used when picking up prescriptions.

All medications supplied under a P.A. program require a prescription and most require your physician's signature.

Physician's offices do considerable paper work for patient assistance programs for patients. This is time consuming for the office staff. Preparing the paper work is a gift. The physician receives no compensation to reimburse the cost of assisting the patient.

Because it is a free service by the physician and his staff, the patient needs to take responsibility of notifying the office when the next renewal needs to be submitted. Usually it is needed every three months.

Some applications can be done on the internet. Many applications must be on forms from the drug company although some of these may be printable off the internet. If possible, the patient should obtain the forms from the manufacturer's web page or via mail to save the physician's office unnecessary work.

Scams exist that demand money up front to find prescription help. Legitimate sites don't ask for money up front.

    Accessing Patient Assistance Programs
       http://www.rxassist.org/

    American College of Rheumatology - Patient Assistance Programs
      http://www.rheumatology.org/practice/clinical/patients/acrast.asp
   
  
    Benefits and Work - United Kingdom
      http://www.benefitsandwork.co.uk/   (May require membership)

    Federal Poverty Guidelines
      https://www.cms.gov/MedicaidEligibility/downloads/POV10Combo.pdf

    Healthcarecoach
      http://www.healthcarecoach.com/resources/index.php?view=detail&id=85&node=23

    Managing Health Care Costs  (Must have Adobe Acrobat Reader to view)
      http://healthinsuranceinfo.net/managing-medical-bills/
      
Book One, Understanding Private Health Insurance
       Book Two, Medicare & Medicaid: A Health Care Safety Net for People w/Serious Disabilities & Chronic Conditions
       Book Three, Options for Avoiding and Managing Medical Debt

    Medication health insurance resources - Dr. Koop's web page
      http://www.kspope.com/medications/index.php

    Nat'l. Organization for Rare Diseases - P.A. Programs
      http://www.rarediseases.org/programs/medication

  
  Partnership for Prescription Assistance
      http://www.pparx.org/en/prescription_assistance_programs

    Patient Advocate Foundation
      http://www.patientadvocate.org/

    Patient Assistance - Rituximab
      For physicians
      http://www.genentechaccesssolutions.com/portal/site/AS/  - for patients
      http://www.rituxan.com/wg-mpa/patient/financial-services/index.html  - for WG/MPA patients

    Patient Assistance for Psychologically Active Drugs
      http://www.nami.org/helpline/freemed.htm

    State High Risk Pools
      http://healthinsuranceinfo.net/managing-medical-bills/high-risk-pools-chart.htm

   Tax Strategies to minimize health costs
      http://www.smartmoney.com/taxmatters/index.cfm?story=20060609  

   Volunteer-Run Patient Assistance for Free Medications - $5.00 fee
      http://www.freemedicineprogram.com


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9. SOCIAL SECURITY DISABILITY

There may be better recovery if you can prove your disability was "work related".  You might want to consult with a lawyer to consider filing for "third-party"/personal injury &/or Workers' Compensation benefits.

    Allsup - a legal firm specializing in disability claims on a contingency basis
      http://www.allsup.com/
      http://www.allsup.com/about-ssdi/free-ssdi-evaluation.aspx

   Benefits Checkup - U.S. National Council on Aging
      http://www.benefitscheckup.org/

    College Students and Disability Law
      http://www.ldonline.org/article/6082

    Disability Secrets - Tips, Secrets, & Advice
      http://www.disabilitysecrets.com/

    Private Assistance Filing Disability Claims      
     
http://www.allsup.com

    Patients are powerful - Seek Specialists/2nd Opinion/Getting Meds/Compare Physicians/Hospital     
      Not medically necessaryNot a covered benefit/HMO Regulators & Complaints/Success Stories 
      http://www.patientsarepowerful.org/services.cfm

    U.S.A. Federal Poverty Guidelines - 2011
     
U.S. 2002 guidelines to determine eligibility for certain programs
      http://aspe.hhs.gov/poverty/11poverty.shtml

    SSD Assistance
      http://www.ssa.gov/pgm/links_disability.htm
      http://www.ssa.gov/disabilityformhelp/

     
    SS Disability Qualifications
- Scroll Down
      http://www.ssa.gov/disability/professionals/bluebook/                                         (For all disabilities)
      http://www.ssa.gov/disability/professionals/bluebook/14.00-Immune-Adult.htm  
      http://www.ssa.gov/disability/professionals/bluebook/114.00-Immune-Childhood.htm

    Social Security On-line Forms - Scroll down
      http://www.ssa.gov/online/forms.html

    Social Security & Disability Resource Center - by a former SSA employee
      http://www.ssdrc.com/

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10.  HOW TO TALK TO YOUR PHYSICIAN

    Be assertive and take an active role to improve your health care.
    Good communication makes for good medicine)
      http://www.vasculitis-patient.com/Talking_About_Symptoms.html

    Be Your Own Advocate
       http://www.webmd.com/healthy-aging/guide/be-your-own-health-advocate


11. MAJOR MEDICAL CENTERS

    Boston University - Vasculitis Center                               (Boston, Massachusetts)
      http://rarediseasesnetwork.epi.usf.edu/vcrc/centers/boston.htm

    Cleveland Clinic - Center for Vasculitis                                
(Cleveland OH)
     http://my.clevelandclinic.org/rheumatology_immunology/vasculitis_center/default.aspx
     http://my.clevelandclinic.org/patients-visitors/billing-insurance/default.aspx
   (For financial assistance)
     http://my.clevelandclinic.org/rheumatology_immunology/patient_information/default.aspx#   
(For brief videos on rheumatology including vasculitis)
    Cleveland Clinic
      http://my.clevelandclinic.org/locations_directions/main-campus/campus-map/default.aspx  (On-line map)
      http://my.clevelandclinic.org/Documents/Corporate/campus_map.pdf 
- (Printable Map of Campus)

    Columbia Medical School                                                          (New York City)
      http://www.cumc.columbia.edu/patient-care

    Duke University Rheumatology Clinic                                   (Chapel Hill, North Carolina)
     
http://www.dukehealth.org/services/rheumatology_and_immunology/about/index

    Emory University Vasculitis Clinic                                        (Atlanta, Georgia))
      http://medicine.emory.edu/divisions/lowance_center   (Chose rheumatology under “Divisions & Centers”)
      http://medicine.emory.edu/divisions/lowance_center/research/vasculitis.cfm

    Johns Hopkins                                                                             (Baltimore, Maryland)  
      
http://vasculitis.med.jhu.edu/                                                  (Vasculitis Center)
       http://www.hopkinsmedicine.org/international/                 (International Information)

     Massachusetts General Hospital                                             (Harvard Univ., Boston, MA)
      http://www.mgh.harvard.edu/rai/

    Mayo Medical Center                                                                  (Rochester, Minnesota)
      http://www.mayo.edu
      http://www.mayoclinic.org/rheumatology-rst
                  
    National Jewish Medical and Research Center                   
(Denver, Colorado)     
      http://www.nationaljewish.org/about/depts/medicine/rheum-endo-gastro.aspx

    Rheuma-Klinik Bad Bramstedt
     http://www.rheuma-zentrum.de/index.php?id=kbb_start

    Rheumatology and Autoimmune Clinic                                (Toronto, Canads)
    Mount Sinai Hospital - Rebecca MacDonald Centre

      http://www.mountsinai.on.ca/care/rmcad/contact-us

    Rush Vasculitis Clinic                                                                 (Chicago, Illinois)
      http://www.rush.edu/rumc/page-1298328977151.html

    Vasculitis Service and Vasculitis Clinic                                  (Cambridge, U.K.)
      http://www.addenbrookes.org.uk/serv/clin/renal/services/vasculitis_lupus.html

    University of Birmingham                                                            (Birmingham, U.K.)
      http://www.crf.bham.ac.uk/activity/vasculitus.shtml

    University of California - Los Angeles, California
      http://rheumatology.ucla.edu/body.cfm?id=27
     
http://www.uclahealth.org/body.cfm?id=453&action=detail&limit_department=15&limit_division=1094&limit_program=0 

    University of California - San Francisco, California                (Four locations in Bay area)
      http://www.ucsfhealth.org/clinics/vasculitis/index.html 
      http://medicine.ucsf.edu/rheum     

    University of North Carolina
      http://tarc.med.unc.edu/contact.php                                            
(Thurston Arthritis Research Center)
      http://www.med.unc.edu/medicine/uncrenal_welcome.htm    (Nephrology and Hypertension)

    University of Pennsylvania - Division of Rheumatology
      http://www.med.upenn.edu/rheum/

    University of Utah - Division of Rheumatology
      http://medicine.utah.edu/internalmedicine/rheumatology/VasculitisCenter/vasculitiscenterPhysicians.htm


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12. RELATED AUTOIMMUNE DISEASE WEB PAGES

    Anatomy of the Immune System
      http://www.microbiologybytes.com/iandi/2b.html

    Antibodies - Autoantibody table
      http://labtestsonline.org/understanding/analytes/autoantibodies/sys_ab_table.pdf

    Antibodies:  R
ecent developments in the use of biologics in psoriasis and autoimmune disorders
      http://www.ncbi.nlm.nih.gov/pmc/articles/PMC555638/

    Antibodies as Therapeutics - 2006 Paper
     
http://www.medarex.com/Development/Therapeutics.htm    

    Antiphospholipid Syndrome (Hugh's Syndrome)    
      http://en.wikipedia.org/wiki/Antiphospholipid_syndrome

    Apheresis (Blood-cleansing)
      http://en.wikipedia.org/wiki/Plasmapheresis

    Autoimmune Diseases - Johns Hopkins
      http://autoimmune.pathology.jhmi.edu/whatisautoimmunity.cfm  

    Avascular Necrosis
      http://www.mayoclinic.com/print/avascular-necrosis/DS00650/DSECTION=all&METHOD=print

    Bactrim (Septra) Desensitization
      http://depts.washington.edu/madclin/providers/protocols/bactrim.htm

    Breast Abnormalities - Systemic Diseases
      http://radiographics.rsnajnls.org/cgi/content/full/19/suppl_1/S11?maxtoshow=#SEC2

    Central Nervous System (CNS) Vasculitis
      http://vasculitis.med.jhu.edu/typesof/cns.html

    C-Reactive Protein Test     
      http://en.wikipedia.org/wiki/C-reactive_protein
     
http://www.mayoclinic.com/health/c-reactive-protein/MY01018

    Churg-Strauss Syndrome - Savvy
      http://www.blackandwhite.org/churg1/names.shtml
     
http://www.emedicine.com/neuro/topic501.htm
      http://cssassociation.org
      http://en.wikipedia.org/wiki/Churg–Strauss_syndrome

    Dental Infection and Disease
      http://www.rheumatic.org/teeth.htm
      http://www.aafp.org/afp/980201ap/taubert.html

    EULAR - European League against Rheumatism
      http://www.eular.org/  

    Immunoglobulin
      http://emedicine.medscape.com/article/210367-overview

    Immune System - NIH/NCR tutorial  (Excellent, with illustrations in color)
      http://rex.nci.nih.gov/behindthenews/uis/uisframe.htm

    Immunology - General
      http://en.wikipedia.org/wiki/Immunology

    Lab Tests On-Line     
      http://www.labtestsonline.org/map/aindex.html   

    Laboratory Tests On-Line (U.K.)

      http://www.labtestsonline.org.uk/map/aindex.html

    Leukocytoclastic Vasculitis - (Hypersensitivity vasculitis)
      http://www.emedicine.com/derm/topic185.htm

    Living with Vasculitis Booklet - University of Birmingham       (Requires Adobe Acrobat)
     http://www.gosh.nhs.uk/gosh_families/information_sheets/vasculitis/vasculitis_families_booklet.pdf

     Mixed Connective Tissue Disease
      http://www.mayoclinic.com/health/mixed-connective-tissue-disease/DS00675
      http://www.medicinenet.com/mixed_connective_tissue_disease/article.htm

    Osteoporosis
      http://www.nos.org.uk/
      http://www.osteoporosis.ca/                                                    (English and French)
      http://www.nlm.nih.gov/medlineplus/osteoporosis.html

    Peripheral neuropathy - Managing the pain, frustration
      http://www.ninds.nih.gov/health_and_medical/disorders/peripheralneuropathy_doc.htm
      http://www.mayoclinic.com/health/peripheral-neuropathy/DS00131

    Vasculitides Diagnosis
      http://vasculitis.med.jhu.edu/whatis/diagnosis.html    

    Relapsing Polychondiritis
      http://www.medicinenet.com/relapsing_polychondritis/article.htm

    Rhuema21st - Physicians Info on Latest News for Rheumatologists.
      http://emedicine.medscape.com/article/331475-overview

    Staphilococcus Aureus
      http://en.wikipedia.org/wiki/Staphylococcus_aureus

    Stem Cell Transplant to Treat Autoimmune Diseases - A fairly detailed study
     http://www.haematologica.org/cgi/content/full/95/2/185
     http://ard.bmj.com/content/67/7/991.abstract

    Understanding Autoimmune Diseases
      http://www.niams.nih.gov/Health_Info/Autoimmune/default.asp
      http://rex.nci.nih.gov/behindthenews/uis/uisframe.htm

    Vasculitis Center - Johns Hopkins Univ
     
http://vasculitis.med.jhu.edu

    Vasculitis - Difficulties with ACR Standards
      http://www.annals.org/content/129/5/345.full.pdf

    Vasculitis - Mayo Clinic
      http://www.mayoclinic.com/health/vasculitis/DS00513

    Vasculitis - Power Point Presentation (Adobe Acrobat .pdf file)  (Not up-to-date, no "biologicals")
      http://intmedweb.wfubmc.edu/download/vasculitis.pdf  

    Vasculitic  Diseases - Power Point Presentation (Adobe Acrobat.pdf file)   (Black and white)
      http://www.columbia.edu/itc/hs/medical/pathophys/immunology/2006/IMM-20BW.pdf

    Vasculitis - European Union Vasculitis Study Group (EUVAS)
      http://www.vasculitis.org/

    Vasculitis EUVAS - Slide Show - Brief review of "Chapel Hill Nomenclature"
     http://www.ndt-educational.org/savageslide2008txt.asp

    Vasculitis - UCL Institute of Child Health - NHS
     
http://www.ich.ucl.ac.uk/factsheets/families/F040127/

    Vasculitis - Savvy

      http://www.blackandwhite.org/savvy/vascu.html

    Vasculitis - University of Birmingham - U.K. - Booklet
      http://www.gosh.nhs.uk/gosh_families/information_sheets/vasculitis/vasculitis_families_booklet.pdf
      http://www.cks.nhs.uk/patient_information_leaflet/vasculitis_arc

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13.MEDICAL LABORATORY TESTS

   
    Allergy  Testing - IgE
      http://www.questdiagnostics.com/hcp/topics/immunocap/immunocap.html

    ANCA - Laboratory Standard in the diagnosis and therpy monitoring of autoimmune disease: vasculitis
      (Excellent information on ANCA testing and interpretation)

    ANCA InterpretationFrequency Of  cANCA, pANCA, Anti-MPO & Anti-PR3 In Vasculitis
      http://www.rdlinc.com/pdf/ANCA-Guide-to-Interpretation-2010.pdf

    ANCA Tests:
      Comparison of different tests for detection of antineutrophil cytoplasmic antibodies
       http://www.medscape.com/viewarticle/568996          
   
    ANCA Tests - Methods and Interpretation

      http://www.specialtylabs.com/books/display.asp?id=47
  
 
    Apheresis including plasmapheresis
    

    AURP - The Physician's Guide to Laboratory Test Selection and Interpretation
       http://www.arupconsult.com/assets/print/ANCA.pdf

    Auto-Antibody Patterns
      http://en.wikipedia.org/wiki/Anti-neutrophil_cytoplasmic_antibody

    Autoimmune Blood Tests - Ref. Chart of Tests/Panels - (currently not available)
    Univ. of Washington, Dep't. of Laboratory Medicine, Immunology Division
    
  Excellent summary of tests, with index, updated in Jan. 2006
      http://depts.washington.edu/labweb/Divisions/Imm/ImmTesting/index.htm


    Autoimmune Testing - Stony Brook Univ. Hospital
     http://www.path.sunysb.edu/labs/mainlab/mainlab1.htm

    Blood Test - Complete Blood Count
      http://en.wikipedia.org/wiki/Complete_blood_count
     
http://www.aidsmeds.com/lessons/CBCtest.htm

    Blood Test Tables and Interpretations (Last update 2002)

     http://web2.iadfw.net/uthman/lab_test.html
   

    Blood Test Tables - Normal values

      http://en.wikipedia.org/wiki/Reference_ranges_for_blood_tests#White_blood_cells_2

    Corticotrophin-Releasing Hormone testing  (Can be useful to determine if steroid discontinuance is safe)
      http://www.ncbi.nlm.nih.gov/pubmed/10612488?dopt=Abstract

    ESR/SED (Erythrocyte sedimentation rate)
      http://en.wikipedia.org/wiki/Erythrocyte_sedimentation_rate

    ELISA (Enzyme-Linked Immunosorbent Assay)
      http://en.wikipedia.org/wiki/ELISA_test

    Imaging Vasculitis of the G/I tract
     http://radiographics.rsnajnls.org/cgi/content/full/20/3/779

    Immunology: Ref. Chart of Tests/Panels -
(currently not available)
    Univ. of Washington, Dep't. of Laboratory Medicine, Immunology Division
    
  Excellent summary of tests, with index, updated in Jan. 2006
      http://depts.washington.edu/labweb/Divisions/Imm/ImmTesting/index.htm

    Interpretation of Lab Test Profiles - Jan. 2002
      http://web2.iadfw.net/uthman/lab_test.html
     

   
Kidney Testing
      http://www.kidney.org/kidneydisease/ckd/knowGFR.cfm
      http://en.wikipedia.org/wiki/Renal_function

    Laboratory Conversion Tables
      http://www.unc.edu/~rowlett/units/scales/clinical_data.html

    Lab Test Common for Lupus
      http://www.mtio.com/lupus/lfalt1.htm

    Lab Tests On-Line:
     Wonderful World of Tests - Links to various on-line lab test information
       http://www.labtestsonline.org/index.html     

    Lab Test - Visual Algorithm - Vasculitis
      http://www.arupconsult.com/Algorithms/VasculitisAdults.pdf
      http://www.arupconsult.com/Algorithms/VasculitisChildren.pdf

    Radioagraphic Tests for WG - Scroll down to Sections 4-9
      Thoracic Imaging of Wegener's Granulomatosis
      http://www.emedicine.com/radio/topic743.htm

    Systemic Rheumatic Diseases - Laboratory Testing - 1998
      http://www.postgradmed.com/issues/1998/02_98/ward.htm

    Urinalysis:
      Slides of Microscopic Examination
      http://www.lhsc.on.ca/lab/renal/

    Urinalysis  Tutorial

      http://medlib.med.utah.edu/WebPath/TUTORIAL/URINE/URINE.html      

    Urinalysis: Informal but expert dissertation - Scroll way down for Urinalysis
      http://www.pathguy.com/lectures/urine.htm
 
      

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14. NATIONAL ORGANIZATIONS

    American Autoimmune-Related Disease Association.
      http://aarda.org
      http://www.aarda.org/patient_information.php            (Requests for information)

      http://www.aarda.org/women.php                                   (Autoimmunity & Women)
      http://www.aarda.org/articles.php                                   (InFocus Articles)
   
    American Behcet's Disease Association
      http://www.behcets.com

    American Hospice Foundation
      http://americanhospice.org                                               (Articles and Links)

    American Lung Association
      http://www.lungusa.org/

    Central Nervous System Vasculitis
      http://cnsvfinc.org

    Churg-Strauss Syndrome Association
      http://cssassociation.org

    National Eye Institue
      http://www.nei.nih.gov

    National Institute for Arthritis and Musculockeletal and Skin Diseases
      http://www.nih.gov/niams

    National Organization for Rare Diseases
      http://www.rarediseases.org/search/rdblist.html         (Orphan Disease List)
      http://www.rarediseases.org/search/rdbsearch.htm   (Rare Disease Database)

   National Institute of Allergy and Infectious Diseases
      http://www.niaid.nih.gov                                                              (Home Page)
      http://www.niaid.nih.gov/cgi-shl/contacts/contacts.cfm     (Key contacts)
      http://www.niaid.nih.gov/factsheets/wegeners.htm             (WG Factsheet)
      http://www.niaid.nih.gov/research/labs/lir6.htm                    (WG Study Protocols)
      http://www.niaid.nih.gov/dait/pdf/ADCC_Final.pdf         (Report to Congress in
                                                                                                            Autoimmune Disease Research)

   National Institute of Dental and Craniofacial Research
      http://www.nidcr.nih.gov/

    National Institutes of Health

      http://health.nih.gov/                                                                    (Access to NIH information)
      http://www.nih.gov/index.html                                                  
(NIH Home Page - Index)
      http://rarediseases.info.nih.gov/research-ct.html      
           (Rare Diseases -
                                                                                                                    (Research & Clinical Trials)
      http://chid.nih.gov/welcome/welcome.html                            (Combined Health Information
                                                                                                                    database)
    National Institutes of Health-Autoimmune Disease Research Plan
     http://www.niaid.nih.gov/dait/pdf/ADCC_Report.pdf             (Autoimmune Diseases Research
                                                                                                                     Plan)
    National Organization for Rare Disorders, Inc. (NORD)

      http://www.rarediseases.org/
      http://www.rarediseases.org/resources/journal_articles_and_abstracts

    Orphan Drug Product Development
      http://www.fda.gov/orphan

    Rare Diseases Clinic Research Network
      http://www.rarediseasesnetwork.org/

    U.S. National Libraries of Medicine - Public Archive of (some) Life Science Journals
      http://www.pubmedcentral.nih.gov/
      http://www.ncbi.nlm.nih.gov/pmc/  

    U.S. National Network of Libraries of Medicine - Medline database
      (Although both search Medline, they can give
different results)
      (The NCBI web site has access to many more databases than does Gateway)
      http://www.ncbi.nlm.nih.gov/entrez/query.fcgi   (Search engine for the NCBI to search PubMed database)     
      http://gateway.nlm.nih.gov                                       (Search engine for Nat'l. Library of Medicine for health matters)     
   
    The Virtual Hospital -

     
1996 Presentation and Discussion of Wegener's Granulomatosis
      http://www.vh.org/Providers/TeachingFiles/PulmonaryCoreCurric/Wegeners/Wegeners.html

(Click here to return to Index)


 

15. GENERAL AND MEDICAL SEARCH ENGINES

     Google Search Engine
      http://www.google.com                                 
(Use Google to find other search engines)
      http://news.google.com                                  (Search for recent news)

     Search Health On The Net
      http://www.hon.ch/

    Search Intellihealth - Harvard Medical School's Consumer Health
      http://www.intelihealth.com

    Search Medscape                                           (Registration Required)
      http://www.medscape.com/px/mscpsearch?searchfor=searchform

    Search Medical for Medical Databases
      http://www.diseasesdatabase.com/ddb14057.htm  

    Search Medical News
      http://www.medicalnewstoday.com/

    Search Medical Resoures                            (Links to many journals, associations, & databases)  
      http://www.medbioworld.com/

    Search Merck Manual - Home Edition
      http://webseek.merck.com/query.html

    Search National Center for Biotechnology Information (Many medical resources)
      http://www.ncbi.nlm.nih.gov/entrez/query.fcgi  

    Search New England Journal of Medicine          (Jan. '75 to Date)
      http://content.nejm.org/search.dtl

    Search for Physicians by Specialty                       (Chose "Search for a physician,
      http://www.ama-assn.org/aps/amahg.htm          then "Accept", then "Medical Specialty",
                                                                                              then enter requested info, then scroll
                                                                                             down to "search from an expanded
                                                                                              list of medical practice specialties)
                                                              
(Click here to return to Index)


16. CLINICAL TRIAL INFORMATION
    Commercial site that lists clinical trials:
www.centerwatch.com

European Clinical Trials for Vasculitis
http://www.med.cam.ac.uk/nephrology/research/vasculitis.html

Government site offering guide to clinical trials:

www.nci.nih.gov/clinicaltrials/understanding

Tradegroup listing of clinical trials:
www.acrpnet.org/resources/trial/questions.html

U. S. Government site that lists clinical trials:

www.clinicaltrials.gov
http://clinicaltrials.gov/ct/screen/AdvancedSearch (Search by location, disease, treatment)

  (Click here to return to Index)

    17.  SPECIAL EDUCATION NEEDS

    Wrightslaw is the place for a parent to get educated about these laws
      http://www.wrightslaw.com/info/sec504.index.htm
      http://www.wrightslaw.com/idea/index.htm

    Special Education Needs - Application Form - State of Washington
      http://www.k12.wa.us/BulletinsMemos/bulletins2004/B048-04%20Attach2%20Form%20E310.pdf

    Parent & Educator Guide to Free Appropriate Public Education - State of Washington
http://www.psesd.org/specialservices/documents/504manual.pdf

18.  CAREGIVERS' SUPPORT